UNREST in Denver March 2nd

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Update  as/of 1:25 pm Thursday March 1:

Unrest is still on for tomorrow but stay tuned for any last minute weather updates.

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MEAction of Colorado is proud to present a screening of Unrest, a Sundance award-winning film by Jennifer Brea, with a panel discussion. Invite your friends, family, and doctors to join us!

The event will be held at 1:30 pm on March 2,2019 at the Co-Op at 1st at 5045 W 1st Ave, Denver, CO 80219-1005. Doors open at 1:00. Refreshments will be served after. Come early to check out the indoor farmer’s market!

Medical providers can earn CME credits. Click here for details.

Donations to cover the cost of the event and to support the work of MEAction may be made online at our GoFundMe page or in cash at the event.

RSVP at MEAction or on Facebook.

Twenty-eight year-old Jennifer Brea is working on her PhD at Harvard and months away from marrying the love of her life when she gets a mysterious fever that leaves her bedridden and looking for answers. Disbelieved by doctors yet determined to live, she turns her camera on herself and discovers a hidden world of millions confined to their homes and bedrooms by ME, commonly known as chronic fatigue syndrome.

Myalgic Encephalomyelitis (ME) is a systemic neuroimmune condition characterized by post-exertional malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients fully housebound or bedbound. At least 75% cannot work or go to school even part time. An estimated 15-30 million people around the world are suffering from ME.

View the trailer here.

Representing ME at the Womxn’s March

Kristen Aguirre from 9News Denver did a very nice segment on MEAction Colorado’s planned participation in the Womxn’s March providing some visibility that is greatly appreciated by those whose lives are so badly impacted by this ‘invisible disability’.

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Group photo courtesy Tom Strobel

Our small but mighty team grew a little bigger with the addition of some last minute volunteers who braved the below freezing weather and helped represent those fighting ME who can’t physically make it through the march.

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Some of our members who are too ill with ME to march – photo courtesy Sue Cunningham

We marched to draw attention to the fact that 75 to 80 percent of the people that are affected by ME are women and historically diseases that predominately affect women don’t get enough attention and research funding.

The Women’s March is a very public inclusive venue and we hoped that we could achieve a lot of awareness by being there.

Several marchers told us they had seen us on TV the night before. And we were able to share information with other people on the route. Altogether a successful event.

Hey, we are Congressional Lobbyists!

Lobbyists at Gardners office 300x300Here’s the MEActionCO team* in front of Senator Cory Gardner’s office building on May 29,2018. We had a positive meeting with his Regional Coordinator, Steven Emmen. We are encouraging Sen. Gardner to co-sponsor Senate Resolution 508 (SR508) to raise awareness of Myalgic Encephalomyelitis.

In summary, SR508 

  • supports the goals of ME/CFS International Awareness Day and
  • recognizes and affirms the commitment of the United States to discovering the cause of, and a cure for ME/CFS and
    improving the availability and quality of medical care for individuals with ME/CFS.

Continue reading

May 12th Backup Plan – Go Virtual

We would love as many as possible to attend our #MillionsMissing Visibility Action on May 12th. But your health comes first. If you don’t know if you will be well enough to attend the public event, a few days ahead of time prepare an individual event in your home. Put on your MEAction shirt and make up a sign and have a picture or short video taken of yourself.

Then on May 12th if you’re not feeling well enough to go to the public event you can post your picture/video to Facebook and/or Twitter or Instagram. Use the hashtag #MillionsMissing so the MEAction Network folks can find and count it. Every event big or small helps build our community.  Click here for more on Individual/Virtual events.

 

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