Keep pressuring Congress for ME research funding

imageThe US House of Representatives is considering HR 7057, which would give $60 million over a 4 year period to the NIH for research into post-viral ME.  In previous infections like COVID-19, a turnover rate from viral infection to ME/CFS was  around 12%.  So we need you to please keep up the pressure on the House to move this legislation forward.

Even if you have contacted them on HR 7057 already, if we want to ever see this funding, we need to keep up the pressure.  So to the extent that you have the energy and health to do so, and especially if you are a healthy ally, please work through as much of the below as you can, and repeat every few days if you can!

  1. Rep. Perlmutter is the only Colorado representative to have co-sponsored it yet.  No matter who your rep is or what your party is, please thank him on Twitter at @RepPerlmutter and facebook.com/RepPerlmutter.  It could be as simple as: Thank you @RepPerlmutter for co-sponsoring #HR7057.  You are a true leader for #pwME and #COVIDlonghaulers in the fight for post-viral #MECFS research.
  2. If Rep. Perlmutter is your rep, email him and call his office at 202-225-2645.
  3. Like/Share/Retweet whatever you can about #HR7057 on social media.
  4. If Rep. Perlmutter isn’t your rep, use Solve ME/CFS’s CONGRESSIONAL MESSAGING TOOL to send an email to your Representative.  Email them using some form of this email and call using this call script.   You can find your Rep’s email address at house.gov/representatives/find-your-representative.
  5. HR 7057 is in desperate need of more Republican co-sponsors, so regardless of where you live or your party, please reach out to our Republicans on Twitter at @RepKenBuck, @RepDLamborn, @RepTipton.  On Instagram at repkenbuck, douglamborn and repscotttipton, and Facebook at facebook.com/buckforcolorado/, facebook.com/CongressmanDougLamborn and facebook.com/CongressmanScottTipton.  Just say something like:  @RepKenBuck, please co-sponsor #HR7057 to fund post-viral #MyalgicEncephalomyelitis research. ME always has a huge economic cost.  If we don’t do anything about #covidlong causing post-viral #MECFS, the job loss and economic impact will be devastating.

In solidarity,
John

Ask your Rep. to co-sponsor post-viral ME Research Funding

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Help us win support for post-viral ME/CFS Research Funding. COVID-19 survivors are frequently exhibing long term symptoms likened to ME. Sources from Dr. Fauci himself to CNN, Forbes and Fox News are mentioning ME in the context of COVID-19.

URGENT ACTION ALERT: Ask your Representative to Co-sponsor H.R. 7057!
Solve M.E. is proud to endorse H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act, to authorize a $60m program expansion for ME/CFS research at the National Institutes of Health (NIH) and expand public and medical education ME/CFS initiatives.

This legislation will bolster ME/CFS research at the National Institutes of Health (NIH) by an additional $60 million for ME/CFS research projects and expanding into connections between ME/CFS and COVID-19 survivors. It will also enable existing public education programs to include ME/CFS and post-viral disease information, with a focus on early diagnosis.

It is essential that as many co-sponsors as possible join this action in a united voice to call for increased funding for post-viral research into ME/CFS.

Please contact your Representative TODAY and ask them to ask them to join this effort.

We in the ME community know more than anyone the incredible suffering and life-long damage that post-viral ME will cause many COVID-19 survivors. Please do as many of these actions as you can. If you have questions or problems, please reach out to me (john.kelty@meaction.net):

April 2020 Newsletter

Hello everyone, I hope you are all staying safe!  Here’s our April newsletter with some thoughts on living through the COVID-19 pandemic.

https://conta.cc/2WUalCR

(Here are Newsletter Editor Lara Heisler’s daughters Olivia and Emma as featured in the April story).

And I see that the March newsletter didn’t get posted here yet, so although some of it refers to events that were cancelled, it is at https://conta.cc/2wsFcuX.