Write to Sen. Gardner for SR 508

contact gardnerHi Everyone! It’s time to show our senators that we still care about Senate Resolution 508 in support of our goals for finding a cure for ME. We’ve been doing phone calls so let’s change it up and send messages this week. Here are  instructions on how to send him a message on his website. Read through it first, put in your name and contact info and change the message for your situation.

Use this link  for the contact form for Senator Gardner:

Fill in the form as follows;

  • How can I help you;

(select)Share your opinions…

then fill in ,your name and contact information

 

Your Message

  • Message Topic:

(select)Congressional Issues  -or-   Health

 

  • Message Subject:

Please co-sponsor Senate Resolution 508

__________

 

Dear Senator Gardner,

I am a constituent from [city]. [I am writing because I have ]/ [on behalf of (my loved one) who has] ME/CFS. I am writing to ask you to co-sponsor Senate Resolution 508; a resolution supporting the goals of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome International Awareness Day. I am a member of MEAction Colorado, a volunteer group working for more recognition and funding of ME/CFS. I participated in the MillionsMissing rally in Denver on May 12.

You may be aware that Myalgic Encephalomyelitis (ME), commonly known as Chronic Fatigue syndrome (CFS) or ME/CFS, is a devastating multi-system disease that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems.

ME has no known cause, no diagnostic tests, and no FDA approved treatments. It is progressive and extremely debilitating.

In Colorado, as many as 42,000 people are afflicted with ME based on figures from the NIH. That could be as many people as live in the city of Littleton.  About 75% of ME patients are unable to work or go to school. About 25% are homebound or bedbound due to severe symptoms.

According to NIH figures, the economic burden from ME in Colorado is estimated to be between $286 and $404 million. The current NIH investment in ME research is $17 million, but by any measure it is a fraction of the investment in comparable diseases. For comparison, MS is funded at $115 million and is half as common and has a lower impact on quality of life.

I urge you to co-sponsor Senate Resolution 508 and encourage Senator Bennet to join you. We appreciate that you work together on issues that affect Coloradoans. This is an issue that affects thousands of the most vulnerable. The support of our senators would bring hope to the Colorado ME community.

For more information visit us at MEActionCO.net.

Thank you very much for your time and consideration.

 

Sincerely,

[Your Name]

__________

 

 

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